Twin Cities CureSearch Walk

The Gegens are participating in the Twin Cities CureSearch Walk on Saturday, September 7th! They know first hand how important it is to raise research dollars to get rid of this awful disease once and for all. You can help! Sponsor The Gegen Five in the walk! Click here for a link to their donation page!

Dangle. Snipe. Celly.

The Gegen Five

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http://rpx.me/1/-B9o  (Click to go to my donation page for the CureSearch Walk for Childhood Cancer to see more information.The CureSearch Walk celebrates and honors children whose lives have been effected by childhood cancer, while raising funds for lifesaving research. You can help us by encouraging your friends, family, co-workers and community to champion our cause.

I stumbled upon the above saying(in orange and yellow) a few months ago and I thought, ” How true this was for me.” Before John’s diagnosis of Stage IV High risk neuroblastoma and the fight for his life, I hadn’t put much thought into childhood cancer. In fact I avoided it…It made me “uncomfortable”. I can’t even believe that I am going to confess to this…but when those terribly depressing St. Jude commercials -with the sad music and those so very sick bald kids came on the TV, I couldn’t turn the channel fast enough. It…

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A Note from The Gegens

John "Mikko" Gegen | Summer 2013 | What a difference a year makes!

John “Mikko” Gegen | Summer 2013 | What a difference a year makes!

If you read our last post, you’ll know that the summer of 2013 couldn’t be more different for the Gegens than the summer of 2012. And that is a good thing.  Scratch that.  That is a GREAT thing! Mikko and his family are making the most of these days of good health!  And in doing so, they’ve also spent time reflecting on how far they’ve come, and they would like to share this message with all of you.

Dear Mini Sticks for Mikko & all the Magnificent Mikko Supporters,

What a difficult year it has been for Mikko and our family. Our little boy has battled what no person should ever have to face, but he’s made it…we’ve made it. I was reminded again tonight as I stumbled upon your cards, letters, and well-wishes from all over the United States and Canada, cheering Mikko on, lifting our family up in our darkest days…how truly blessed we are. Mini Sticks for Mikko and all of you have proven to us how truly kind and caring people are. People that don’t even know our little hockey fan, but are rooting him on anyways.

We can’t thank you enough for your support, letters, and the bunches and bunches of mini sticks you have sent Mikko’s way! Our entire hockey loving family has found joy in these mini sticks and they have put lots of smiles on our faces, along with a few chips in our coffee table. 🙂

We are ecstatic to report that Mikko’s scans at the end of May came back clear once again and he remains NED (No Evidence of Disease)! Early in June he had his hickman catheter removed from his chest as well as the feeding tube from his tummy. Mikko is officially footloose and fancy free! He has been swimming like crazy, tubing at the cabin; a ring bearer in a wedding and his Make A Wish trip to Hawaii is just a few weeks away. We are all loving this wonderful summer and making up for lost time.

Mikko will continue to have scans and bone marrow biopsies ever three months with his next one will be at the end of August. We don’t know what our future holds, but we do know that today is a gift….the answers to all of our prayers. We continue to take life one day at a time.

From the bottom of all of our hearts we thank you, thank you, thank you!

Jon, Shelly, Mikko, Michael & Jeffrey Gegen

So… in case you were wondering just how awesome YOU all are…. there you have it!  Thank you so much for all you have done for this very special hockey family!  You rock!

{ Note… if you want to keep up with The Gegens, you can follow them here: The Gegen Five  The Caring Bridge site will only be updated when there are medical issues to report.  Which, thankfully, is not very often these days!}

Dangle. Snipe. Celly.